I don't think a lot of this stuff is doable or even a good idea
My sister in-law is a medical professional, researcher and college professor. All of her research articles are based upon data gleaned from shared databases, which consolidate data from all over, since it must be provided to the Federal government, who untimately funds medical R&D as well as care. " Circumvent the health care system, which is not designed for the collection of data, and legal privacy concerns by collecting health data outside the medical system". 1. This would be illegal. 2. The health care system is most certainly designed for data collection, since providers can't get paid by the government and/or private insurers without highly detailed data about patient diagnosis and treatment. 3. A patient can give their consent for their medical data to be shared between insurers and providers, but there is no way they can compel any particular research program to share data aquired by them with other databases, since they would be breaking various federal laws. There are other data collection sources, which collect and disseminate information about your health care for a price. Everytime you get a prescription filled at most pharmacies, that data is sold to a data wharehouse company in D.C. which ultimately sells it to drug companies who use it to determine what drugs (theirs or competitors) are being prescribed by which doctors everywhere. If a competitor's drugs are being prescribed by a particular doctor, they make a point to ship samples and marketing materials to the doctor to try to influence him/her to prescribe their product instead. At one point, they hoped to sell directly to patients based upon this data, but congress put the kabal on that idea. So you see, the most important details about your health care are already up for grabs for anybody with the $$$ and a reason to know.
