For patients suffering from Crohn’s Disease, a new website called Crohnology is offering patients a way to connect across the digital landscape. Founder Sean Ahrens wrote the following on his blog:
“As some of you may know, at the age of 12, I was diagnosed with Crohn’s Disease, an incurable, inflammatory disease of the digestive tract. After having several devastating flare-ups, I went on a quest to do anything I could to treat my disease by experimenting with numerous alternative and experimental therapies and diets (including intentionally infecting myself with parasitic worms).
When I realized that the information I had built up from this quest could heal other patients, I went on another quest: to meet as many patients as I possibly could and share the information I had learned with them. But I knew there were tons of other patients around the world who had gone through their own journeys and had extremely valuable information to share themselves. And by sharing it, they could heal more patients. And so I went on a new quest: to make it possible for Crohn’s & Colitis patients around the world to share and learn from one another.”
The website is currently in limited beta testing. Ahrens will be showcasing the website at the Medicine 2.0 Conference later this week.
Image: Screenshot via Crohnology
Share your thoughts in the comments below. Do you think this website will help patients connect on a deeper level? Could this support group offer a new way to treat Crohn’s Disease?
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